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The MHE Research Foundation

NY, New York

Cause Description:
The MHE Research Foundation is nonprofit a tax deductible 501(c)3 organization for researchers, physicians and families dealing with this rare genetic bone disease. MHE is a genetic bone disorder in which cartilage-capped bone tumors grow from the long bones, growth plates or from the surface of bones throughout the body. These tumors can cause numerous problems, including: compression of peripheral nerves or blood vessels; irritation of tendons and muscles resulting in pain and loss of motion; skeletal deformity; short stature; limb length discrepancy; chronic pain and fatigue; mobility issues; early onset arthritis; and an increased risk of developing chondro- sarcoma, reported risk of 2%-5% over life time. Surgery, physical therapy and pain management are currently the only options available to MHE / MO / HME patients, but their success varies from patient to patient and many struggle with pain, fatigue and mobility problems throughout their lives. The MHE Research Foundation mission is to REACH, advance and support the following. RESEARCH, to help researchers one day find a treatment / cure for MHE. Our foundation works hand in hand with researchers from around the world on this mission. EDUCATION, to provide clinical information, guides to help benefit both families and physicians. ADVOCACY, bring awareness about this disease in all areas throughout the world. CLINICAL, to help provide resources to families enabling them to find the medical care they need. HOPE, is that the research being conducted on MHE, the informational resources will bring a better quality of life to the families affected by this disease.

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